Well you have good days, and then you have bad. Today was our bad day! Brooke is actually doing better physically. But emotionally she is a mess. She spent a lot of time in playroom today. She also spent a lot of time fighting us on taking meds, changing her pants, and drinking. Brooke needs to drink more, take her meds good, and go to the bathroom better toleave the hospital. Right now we have not met any of these criteria. The playroom is also closed tomorrow. And half of my relief team (Tim and Aidan) leave tomorrow morning. I am feeling a little nervous about tomorrow, She did so well today whenever Aidan was around. I think it gave her some kind of normal.
We also dealt with an unpleasent room mate. She is 22 and in the PIKU. Not sure why??? But her mouth and her boyfriends mouths have been awful all day. To make it worse she was treating her mother terrible. The girl has Chiari. I just kept thinking waht if this is how Brooke will be? What if she has this anger as an adult? I started to slip into this sadness. As Brooke yelled at me, I felt the tears come. I looked at one of the Child Life Specialist and said, "I need a minute." I went to the bathroom and prayed, washed my face, and pulled myself up off the floor. I went back in the room, looked at Brooke and said, "I am your mother. I love you and want you to feel better, but you will treat me with respect." She looked up at me and said, "Ok mommy, I love you." I know this is a life long road we are on, but I know with a little faith we can get this life thing done! :) Praying for a better day tomorrow and a safe journey for 2 of my boys!
I am still praying Melinda and I know countless other people are as well. I hope you feel our love and the love of God wrapped around you and comforting you during this time. You are such a wonderful mother and Brooke, as a result of your mothering, is a good girl. Hang in there. You will be able to come home soon. We love you!
ReplyDeleteI am still praying for you guys. My heart goes out to you and I can't imagine how painful it is for all of you.
ReplyDeleteHugs! I cannot imagine how hard it is to maintain that parental role and not just let her do and say what she wants b/c of the situation. In the long run the example you set on love, respect and your expectations will be apparent. She tested her boundries and you stepped up and showed her where they were.. and that my friend.. is one of the moments in her little life where her foundations of integrity and worth will come from. She will not be defined by this illness.. It will not be her crutch. I am inspired by your strength!
ReplyDeleteWe're all praying!! I hope that today is better for you, and for Brooke. I'll be praying that your hubby and Aidan have a safe trip home!
ReplyDeletePart of Brooke's fistiness can be from drug withdrawl. You are doing such a great job handling her and all this stress. Feel our love and prayers crossing the miles. Alice
ReplyDeleteMelinda - you never cease to amaze me as a mother, wife and woman of God. I prayed the last 48 hours went better and Jesus' strength continue to uphold you. You are loved by many - feel His peace now!
ReplyDeleteJerry
Praying peace for little Brooke's spirit and body and strength and grace for you, mommy. Praying safety for your hubby and Aidan as they come home. Praying you will be able to shine a light to Brooke's roommate and her family and friends in the midst of your own pain and suffering. (I cannot believe you have to share a room. I can't even imagine having had to share a room when Danica was going through her fits after surgery.) Much love, Monica www.teamdanica.com
ReplyDeleteMelinda, you are one of the strongest mommies I know. I know that's a hard role to keep up. And you don't always feel that way! I continue to pray for you and Brooke and everyone in your family.
ReplyDeleteWe are praying for you all! May God's strong hand be felt by your family coming up underneath you and sustaining you in his love.
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