Is it possible to wish your child was more sick than they are? The answer..,yes! We have been waiting for almost 2 years now on a silly urology test to come back worse then before. If this urodynamics test tomorrow does not come back worse, we will not be able to have the dethering surgery on Brooke's spine in 4-5 months. What does this mean? After her decompression surgery, she will have to have MRI's every 2-3 months. She will need to be monitored closely to make sure her brain is not being pulled back down by her spine. Each time she has the MRI she will need to be sedated. If the brain is pulled down again, she can have the spinal surgery, but she also might need another brain surgery.
So yes, I would like her urodynamics to come back worse. Maybe she would not have to go through more testing. But in order to get a good result on the test, Brooke must lay perfectly still. Try explaining that to a 4 year old. Let me just say this is not a pleasant test!
As a mom you want to figure out something that will keep her mind off of the test. Movies, stories, dolls...nothing has worked in the past. This time, we are doing our nails. Yes our nails. Why not have a nail painting party? Why not do our make up? All girls feel better when their fingers are painted, and lipstick pretty much cures anything!
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