Ladybug Secrets:Don't let the small stuff bug you. And Spot new opportunities.
Thursday, September 2, 2010
Each Day is New
Ok I am still just sitting staring at the keyboard. No words. Basically it is her behavior. She throws these awful fits. In fact, a couple have been so bad they leave me in tears. She hits, kicks and screams with all the power she can come up with. The fits really have nothing to do with anything. She is not angry about anything. And after she throws the fit she returns to normal activity. When I try to talk to her about it, she says, "Mommy I was not screamin." What!? Brooke also just says these random off the wall things. They really make no sense and she says them at odd times.
So most of you are probably thinking, "Well duh Melinda, she did just have brain surgery." And I know this. That is probably why I have not written any of this down. It is very hard to explain. But if you go through one of the fits with her, it would be clearer. I really feel like my daughter is completely not in my control.
All of this has really clarified for me that Chiari is a life long battle. There is no quick fix for most. We need more research, more doctors to learn about it. I as a mom need to educate myself more. I need to find ways to help my lady cope with her pain and help her learn healthy ways to express she hurts. I need to just be there for her on the bad days. And just as important on the good days. My one friend who has Chiari always tells me each day is different, each day is new.
So if you see us out, and Brooke refuses to talk. Or she shrugs your hello off, please do not take it personal. It is probably not a good day. If she jumps up and down and talks your ear off, her day is shining bright! As for me, I am gonna pull myself up by the boot straps and move forward. No time for wallowing here! Got some cute kids and a hubby to take care of!
Posted by Melinda at 11:23 PM