Well you have good days, and then you have bad. Today was our bad day! Brooke is actually doing better physically. But emotionally she is a mess. She spent a lot of time in playroom today. She also spent a lot of time fighting us on taking meds, changing her pants, and drinking. Brooke needs to drink more, take her meds good, and go to the bathroom better toleave the hospital. Right now we have not met any of these criteria. The playroom is also closed tomorrow. And half of my relief team (Tim and Aidan) leave tomorrow morning. I am feeling a little nervous about tomorrow, She did so well today whenever Aidan was around. I think it gave her some kind of normal.
We also dealt with an unpleasent room mate. She is 22 and in the PIKU. Not sure why??? But her mouth and her boyfriends mouths have been awful all day. To make it worse she was treating her mother terrible. The girl has Chiari. I just kept thinking waht if this is how Brooke will be? What if she has this anger as an adult? I started to slip into this sadness. As Brooke yelled at me, I felt the tears come. I looked at one of the Child Life Specialist and said, "I need a minute." I went to the bathroom and prayed, washed my face, and pulled myself up off the floor. I went back in the room, looked at Brooke and said, "I am your mother. I love you and want you to feel better, but you will treat me with respect." She looked up at me and said, "Ok mommy, I love you." I know this is a life long road we are on, but I know with a little faith we can get this life thing done! :) Praying for a better day tomorrow and a safe journey for 2 of my boys!