This is going to be a quick update post because I am too tired to do more. I know many of you having been praying for my upcoming trip to see Dr Henderson. On Sunday, Tim and I discussed how hard this trip would be on use financially. And also on me physically. I am really just not up to traveling like that right now. I told Tim I was going to email Dr B (Brooke's doc) and see if he responded. So on Sunday night i sent Dr B all my scans and a short email with my plan for surgery. I told him I just wanted to be sure from a neurosurgeon that I was on the right path and there was no chiari. I also emailed him about Aidan and his increasing headaches. Poor guy has really been struggling. Not long after I received a response! (As far as i am concerned, this doc is amazing!) He first addressed Aidan's headaches and said he wanted more scans done. Basically he wanted the scans I had done. Then he told me that he saw no Chiari and I was on the right path.
This email really encouraged me to push forward. It also helped Tim and I to decide to cancel my trip to Maryland. What a relief! As much as I wanted to meet the amazing Dr H, I was not sure it was where I needed to be. I have a second opinion now and feel confident in this decision. So my surgery is scheduled for September 24 in Cincinnati. The scary part is I am not supposed to do any lifting, driving, or much of anything else for 4 to 6 weeks! Yikes! I have to make this work! There are no do overs when it comes to this kind of surgery. I have to be strong and fight the urge to control every little detail.
If you could please pray as this is a very scary road. I know the surgery has the potential to help my neck and head. I also know I am losing the feeling in my legs very quickly. One minute they are completely numb and the next they are searing with pain. I am trying to walk, but stairs are very hard as is long distances. I am not sure if I will need to resort to a cane soon. My heart is sad, as I feel my body slipping away without my control. And yet I feel so thankful for what function I do have. i am seeing my doc tomorrow about the costochondritis. It is becoming hard to breathe. I hate complaining so I am very sorry if this is how it sounds! I am mainly asking for prayers. I will write in more detail soon! I am not proofing this at all, so sorry for mistakes!!! Thank you for all of the prayers and support!!! They mean more than you could possibly imagine.