tag:blogger.com,1999:blog-5574988310513496230.post6034160979193452691..comments2023-04-15T07:20:51.260-04:00Comments on Lovely Little Lady Bug: Hit "Pause"Unknownnoreply@blogger.comBlogger3125tag:blogger.com,1999:blog-5574988310513496230.post-47719819055492567182013-01-28T14:12:10.653-05:002013-01-28T14:12:10.653-05:00Nic
Thank you for being my sounding board in the f...Nic<br />Thank you for being my sounding board in the first days after diagnosis! If it had not been for you and Julie Carter, I would not have known to keep searching! It was a wonderful gift to have you both to listen and lead! I only pray that I can also do this for others! Bunches of Hugs Back!Melindahttps://www.blogger.com/profile/04045914489871837476noreply@blogger.comtag:blogger.com,1999:blog-5574988310513496230.post-2936030875795020682013-01-28T14:04:41.038-05:002013-01-28T14:04:41.038-05:00Thank you so much for sharing your feelings and ca...Thank you so much for sharing your feelings and candor about your observations regarding your family's experiences and the reality for most of us afflicted with Chiari and related disorders! Chiari diagnosis is far from simple! So many "stars must align" for a better than average outcome. Much is stacked against living a near-normal life. We all remember those initial days after diagnosis. We clearly remember the fear that lingers many years later ... But somehow we found strength to trudge forward, searching to find the best outcome for our family. Fear controls, binds, stifles us for the most part. Some use fear to push forward while others succumb to it's power. Second, third, and even fourth opinions from Chiari specialists are an amazing tool every Chiari family should utilize! I believe God gave me the strength to seek out the best care for my family. If I had to do it all over again, I would do the same without question or hesitation! Why some tempt fate, not heeding the words of those who've "been there, done that" is beyond me. As an advocate for those afflicted with Chiari, I understand the helplessness we feel when our suggestions for second and third opinions fall upon deaf ears. Some choose to make different choices out of fear without considering options ... Some with devastating consequences. It will always be a hard pill to swallow, for sure! Again, thank you for your amazing words! Sending oodles of hugs and love, Nic ღNichttps://www.blogger.com/profile/04221432317691316341noreply@blogger.comtag:blogger.com,1999:blog-5574988310513496230.post-41378042116539525182013-01-26T23:27:28.655-05:002013-01-26T23:27:28.655-05:00That is so wonderful! I got teary eyed reading thi...That is so wonderful! I got teary eyed reading this. Way to go, Brooke. Mirandahttps://www.blogger.com/profile/18194040647790020420noreply@blogger.com